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Charlie’s fund has very specific aims; to support families bereaved of their children, critically ill children and families living with metabolic disease. Our current focus is disseminating our book ‘The Little Star’ into UK children’s hospices.

The books will be part of a resource bag given to bereaved children; a tool to support their grief.
However, over the last 7 years we have also supported several other projects and organations…


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Care for the family were recommended to us by two friends from church. Despite our apprehension at attending the 'day for bereaved parents', the support we received from this day and the organisation was incredible. Care for the family manage a bereaved parent’s network and various days and weekends around the country for bereaved parents to attend and receive support, enable parents to share their experiences and give time to talk about their lost children.

They have a wonderful website (www.careforthefamily.org.uk/bpn) full of useful information for families and friends who have been affected by the loss of a child.

Charlie's fund have donated a substantial amount of money to Care for the Family to ensure that their invaluable support for parents like us, continues.

Visit Care for the Family Website
Charlie was cared for on this unit and died on 15th August 2009 in one of their family rooms. The first project that Charlie's fund enabled was the much needed refurbishment of this room. This room has given families in desperate situations a little more peace and comfort. We have also provided a large book chest to enable parents to read to their critically ill child. Reading books to Charlie was the only thing we felt we could do for him when professionals and machines were doing everything else. 2012 saw the full refurbishment of the second family room and we also purchased a specialist mattress for nursing children and babies with brain injuries; the platform cost almost £4000. In 2014 we also purchased a sensory trolley (£6000) for the long-term patients on the unit We continue to support the unit as they require, and receive so much encouragement from families we may never meet, but have been touched by Charlie’s little life.

Visit Leeds PICU Website
CLIMB are a national organisation working on behalf of children, young people, adults and families affected by metabolic disease. Their purpose is to provide Metabolic Disease specific information, advice and support to children, young people, adults, families and professionals in the United Kingdom and to fund educational and primary research programs, develop treatments and medical services.

With the help of Charlie’s money, CLIMB have published an MCADD website and are now holding an annual MCADD conference. The conferences are attended by families affected by MCADD, nurses, researchers, professors and Doctors from across the UK who shared their MCADD knowledge, experiences and research.

Charlie’s tiny life is having such an inspirational influence. CLIMB have also used Charlie’s fund to improve life for families living with MCADD by changing the main protocols and guidelines and translating them into the major European languages so that families can download copies to take with them on holiday.

Visit the Climb Website